The Adelaide Health Foundation (AHF) has launched a Study of Genetic Counselling and Testing in the Republic of Ireland, which considers the current position of the Irish healthcare system’s clinical genetic services. The report found that families requiring access to genetic testing and clinical genetic expertise are facing significant challenges in their personal lives due to the lack of access to correct expertise and ongoing extended waiting times.
Among the eight recommendations of the report is the establishment of a national educational framework to support the growth of mainstream genetic and genomic testing, and to develop healthcare professional competency in genomic testing and consent procedures.
On foot of this recommendation, the AHF has committed €1.5 million to improve Ireland’s genetic counselling and testing services. The AHF is a voluntary foundation focused on advancing and promoting equitable access to healthcare services and education in Ireland.
Through a three-year multi-phase project (2025-2027), and working in conjunction with national, academic and healthcare partners, the AHF will support projects which improve the patient experience, commencing with a focus on education, including the development of an accredited programme for Health and Social Care Professions and an MSc in Genetics.
The research report’s recommendations are reflective of key areas of focus in the HSE and Department of Health’s National Strategy for Accelerating Genetic and Genomic Medicine in Ireland.