Home » Additional €5 million funding for rare diseases
The Department of Health said this investment, “will support a broad range of initiatives aimed at improving the lives of the estimated 300,000 people in Ireland living with a rare disease. This funding includes approximately €700,000 for the development of services and supports for epidermolysis bullosa patients, including additional nurse led community supports, care coordination and mental health supports.” It will also support the implementation of the new National Rare Disease Strategy, which will be published in the coming months.
Minister Donnelly previously announced funding under Budget 2025 that will provide resources to improve care coordination and to strengthen collaboration with international expertise through the European Reference Networks. These networks connect healthcare professionals around Europe with specific expertise in rare diseases, facilitating collaboration on diagnosis and treatment for patients.
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